Thursday, August 15, 2013

Disinformation, Snake oil, and False Cures for Autism and Learning Disabilities Beware.

When I was in school 30 or so years ago, I remember being sent across the school to work with younger kids on my writing.  Dyslexia was a new and misunderstood phenomenon, and they didn’t have a program to help me.  My brother was taught how to read lips and was diagnosed with auditory dyslexia, something that does not even exist.  We have come a long way in 30 years.  This is a great thing, but we still have to be aware of the information and disinformation that is out there.
   Once you have become involved in the world of learning disabilities, you will begin to explore and try to educate yourself. As you discover new programs and methodologies, make sure you look into each for their research and reputation.  Any program can say they have research to back them up.  Check to see what kind of research and who did it.  Was it a reputable independent researcher?  It is interesting to see some companies do the research on themselves and on a very select few clients.  Let me be clear:  disorders such as autism, turrets, ADHD, etc. to date do not have cures.  There are wonderful programs that can help children control behaviors and improve their ability to attend to tasks which enable them to learn more easily, but there is no magic cure.  Unfortunately, there are people out there who are willing to prey on the desire of parents and educators who want to fix rather than assist our special needs students.

   When parents first learn their child has a disability, there is a mourning process they go through.  They see the loss of the child they thought they were going to have as they come to embrace the child they were given.  As with any mourning process, it takes different people different amounts of time to go through the stages.  Some parents stay in the denial stage for much longer than others.  Others stay angry and will take it out on the teachers and care givers. Others come to acceptance very quickly and look at the child as who they are and can plot a new course easily.  Whichever path a family is journeying on, the more information they have the better.  There are groups on the web, school district support groups, social services, and religious organizations today that did not exist 10-20 years ago. Use these tools and support both as educators and parents, but use them wisely not blindly.  If something seems too good to be true, look into it and be sure it is credible and reliable.  There are some amazing programs out there, but unfortunately there are some you need to be wary of as well.  Be sure to share what you learn both good and bad with others who might need your guidance.  This journey is a journey of a community and with special needs kids they saying it takes a village is never truer. 

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