I want you
take a minute and imagine that someone took away your power to make any
decisions for yourself each day. They
told you what to wear, eat, where to go and what to do at all times. Now,
imagine for whatever reason, you could not tell them what you wanted or how you
felt about it. In our society that is
what we call prison and punishment. For
our children with the greatest special needs this is their daily life. As care givers it is important for us to step
back and remember this and try to find ways to let them have as much control
over their lives as possible.
With a normally
developing child, it can be terrifying to let our children go and spread their
wings knowing they will fall and bump as they learn to fly. When a child has special needs, that fear is
magnified. We cannot let our fears hold them back for it will only frustrate
them more. Try to keep in mind both the
cognitive age of the child, the developmental age, as well as the chronological
age when deciding what kind of control to give them and how to let them have
it. Making it a team decision between school, therapists and home can help so
that consistency is maintained and independence reinforced. Everyone’s end goal is the same: to see the child
as independent and happy as an adult as possible.
How can you give
the child independence and self-determination?
At home you can let your child
choose their clothing and participate in shopping. You can give them a choice in the order they
get things done. With their bed room,
you can ask if they like the color and or decorations and change them. It does not mean to give them control of the
family, but to make them an active rather than passive member. At school a teacher can do this as well by using
a child’s interests in assignments. Or
letting them read a book of choice.
Giving the class a vote on two activities either of which fits the
criteria needed also lets them feel empowered.
We sometimes feel it is easier for us to have our students sit together
so we can assist them. Give them a
larger section or find peer buddies to help out so they feel less
constrained. When walking in the halls,
let go of the notion of a straight line, let them walk and back off a little
giving them a feeling of independence and confidence. All of these small things add up to an
individual who is learning to handle themselves confidently in the real world
while we are still there to assist if need be.
You would be surprised at how little the assistance is really needed
once they get the hang of it.
If we are ever going
to see our children as more than dependent special needs children, we need to
start treating them as such. We need to
stop treating them as prisoners of their disability, controlling every aspect
of their lives and teach them to make decisions and choices for
themselves. We need to encourage them to
make mistakes and learn from them without getting upset before they are adults
just as we do with our other children.
Let our little birds fly and they will soar.
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